Saturday, February 28, 2009

How We With MS Feel

A friend of mine found this and I just loved it. I've highlighted the ones that apply to me in blue. The ones that effect particularly bad in red. (mind you, this is me not in relapse. In a relapse, these would ALL be red)


How We With MS Feel

Painful Heavy Legs: Apply Tightly 20 LB ankle weights and 15 LB thigh weights then take a 1 mile walk, clean the house, go shopping and then sit down - how ya' feeling now?

Painful Feet: Put equal or unequal amounts of small pebbles in each shoe then take a walk, if we are mad at you we would prefer needles to pebbles.

Loss of Feeling in Hands and/or Arms: Put on extra thick gloves and a heavy coat then try and pick up a pencil, if successful stab yourself in the arm.

Loss of Feeling in Feet and/or Legs: Ask a doc for a shot of Novocaine in both of your legs and then try and stand up and walk without looking like the town drunk. Hopefully you won't fall down.

TN (Trigeminal Neuralgia): Take an ice pick and jam it into your ear or cheek whenever the wind blows on it, or a stray hair touches it. If you want something easier to do, get someone to punch you in the jaw preferably daily.

Uncontrollable Itching: Glue or sew small steel wool pads to the inside of your shirt, pants and undergarments wear them for an entire day.

Tingling: Stick your finger in an electrical socket - preferably wet.

Tight Banded Feeling: Put 12 inch wide belt around you and make is as tight as you can and leave it there for the entire day. How ya' breathing?

Shots: Fill one of our spare needles with saline solution, saline won't hurt you, we would love something worse but don't want to end up in jail. Give yourself a shot everytime we do our shot.

Side Effects From the Shot: Bang you head against a wall, wrap yourself in a heating pad, wrap your entire body with an ace bandage tightly then finally treat yourself to some spoiled food or drink.

Trouble Lifting Arms: Apply 20 LB wrist weights and try and reach for something on the highest shelf in your house.

Spasticity: Hook bungee cords to your rear belt loops and rear pant leg cuffs then for your arms hook bungee cords to your shirt collar and cuffs on shirt sleeves then go dancing.

Poor Hearing/Buzzing in Ears: Put a bee in each ear and then put a plug in each one... Bzzzzzzzzzzzzzzzzzz

Balance and Walking Problems: Drink 100 proof grain alcohol and then sit and spin in an office chair for 30 minutes, now get up and see what happens.

Urgently Needing to Pee: We put a .5 litre remote controlled water bag and drip tube in your pants, we point out 2 restrooms in a crowded mall, then we tell you that you have 30 seconds before we activate the water bag (by remote control) to get to a restroom. Just for spite we may make that 20 seconds without telling you.

Bizarre and Inexplicable Sensations: Place tiny spiders on your legs or arms and allow them to periodically crawl around throughout the day, heck all day would be good too.

Pins and Needles: Stab yourself repeatedly with needles all over your body or better yet... Get a very large tattoo in your most sensitive area.

Dizziness (Vertigo): Get on a gently rocking boat all day and all night and take several walks around the deck with your eyes closed.

Fatigue: Stay awake for two full days to induce incredible fatigue and then cook dinner, clean the house, walk the dog and see how you feel. Please do not compare MS fatigue to you being tired from only a few hours of sleep - it's not the same at all.

Cognitive Function (Brain Fog): Take a liberal dose of sleeping pills but stay awake. Try and function properly and think clearly. To make it even more real without killing yourself of course, take the sleeping pills with a small sip of wine.

Cognitive Function (Speech Issues): For the next 24 hours, every 10th word you say must be spoken in Chinese. For instance, say you just got bit by your dog on the hand. You would then say "Damn it, the dog just bit me in the h...h... damn it what's the word?" After you google the Chinese word for hand, have someone hit you really hard in the back of the head with a 2x4, it must be hard enough to give you amnesia. Now, go back and finish the dog sentence. Don't remember what the hell you were saying, do ya? Welcome to our world.

Bowel Problems: Take a 4 day dose of an anti-diarrhea medicine followed directly by a 3 day dose of stool softeners for a minimum of 3 weeks, at the end of 3 weeks sit down on a hard uncushioned chair and stay there till tears appear.

Burning Feeling: Make a full pot of boiling water and then have someone fill a squirt gun with the boiling water and shoot it at yourself all day long. However, you can give us the pleasure of shooting you instead... optional of course.

Intention Tremor: Hook your body to some type of vibrating machine try and move your legs and arms..... hmmm are you feeling a little shaky? You are not allowed to use anything fun for this lesson.

Buzzing Feeling When Bending Our Heads to Our Chest (L'Hermitte's): Place an electrical wire on your back and run it all the way down to your feet, then pour water on it and plug it in.

Vision Problems (Optic Neuritis): Smear vaseline on glasses and then wear them to read the newspaper.

Memory Issues: Have someone make a list of items to shop for and when you come back that person adds two things to the list and then they ask why you didn't get them. When you come back from shopping again they take the list and erase three things and ask why you bought those things.

Foot Drop: Wear one swim fin and take about a 1/2 mile walk, nothing else needs to be said for this one, you'll get it.

Depression: Take a trip to the animal shelter everyday and see all the lonely animals with no home. You get attached to one or more of the animals and when you come back the next day you come in while they are putting her/him asleep.

Fear: Dream that you have lost complete feeling in your feet and when you wake up wiggle your feet, just so happens they don't move. Think about this every night wondering whether something on your body won't work the next day when you wake up.

Swallowing: Try swallowing the hottest chilli pepper you can find.

Random Nerve Pain: You try to fall asleep at night, but no matter how you lay the part of your body that you're laying on hurts. If someone tries to touch that area, fight the urge to chop off their hand in order to make them stop. Stab yourself in the side, hip, leg...really wherever...with a knife, and twist it for good measure. Tomorrow pick new spots to stab at random. Do this daily, better yet, have a friend stab you when you least expect it for full effect. You must increase stabbing the later the day and night go on.

Heat Intolerance or Feeling Hot When it's Really Not: You are on a nice vacation to Alaska. It's 35° outside and 65° inside. Light a fire for the fireplace and then get into it. Once you have reached about 110° tell me how you feel, even a person without MS would feel bad, now add all of the above symptoms - welcome to our world.

Then Finally...
After subjecting yourself to the items above, let everyone tell you that you are just under a lot of stress, it's all in your head and that some exercise and counselling is the answer.

Wednesday, February 25, 2009

Update...

First, this is gonna be a short post, as what they thought was a 'flare-up' is actually a full blown relapse. I am in bad shape. They have this thing they score your level disability/symptoms with based on what you are experiencing and how severe they are. Mine has jumped from a 25 to a 53 in a matter of days. I can't talk, think, walk, use my hands, or even see for shit right now.

But- the good news is- I don't have Lupus!!!! I went to the specialist on Monday, and he did a very thorough exam and went over my tests, and he's convinced it's a false positive and I don't have it. THANK GOD!!!! Needless to say, that is a huge weight off my chest.

They are coming to the house to administer IV steroids for 3 days in a row, that should significantly reduce the swelling in my brain and make this relapse in end a lot faster. So, I will post again once my brain is actually functioning a bit better.

*hugs* Mis

Saturday, February 21, 2009

Went to the neurologist...

I went back to my neurologist yesterday- she said it's not a relapse, more like a 'flare-up'. She said in order for it to be classified as a true relapse, there has to be a significant appearance of new symptoms, or old ones acting up to being debilitating. She said flare-ups will happen, they can be brought on by the tiniest reasons. Stress, illness, infection. I guess some people with spinal lesions will even get a flare-up from just moving wrong.

I told her I'd had a tooth pulled on Tuesday, and she said she bet that's why I had this flare up. I told her the visit itself went really well- but that I was stressing and freaking about the appointment bad because my previous visit was horrific. She asked if I was in pain from the tooth- I said yes, and it's like my body got confused and started sending the pain signals all over that side of my face, so it was very very painful. She nodded and goes "yeah, there's your flare-up. Stress, pain, possibly even some infection in the tooth."

*sighs*... so while I'm relieved it's not a relapse (aka, new lesions on my brain essentially), it's a bit disheartening too. I mean, it takes so little to make me feel like complete crap. It's like an oxymoron- you have a disease that compromises your immune system, and the drugs to treat the disease compromise your immune system even more, but don't get sick or an infection or you'll make the disease angry! *laughs* OOhh and yeah, we know you have a life-long history of internalizing stress to the point it manifests physically, but don't stress out either or that's gonna piss off the disease too. I'm starting to wonder if that's the hidden reason I'm all these drugs- to stupify myself so much I'm not capable of going out and getting sick or thinking enough to stress.

Oh and she did put me on something for nerve pain (Neurontin) as well as up the dosage on the med for muscle spasticity/pain (Baclofen). Good and bad there- the good is the fact I slept for a good six hours straight without waking up last night. That is HUGE- I can't remember the last time I did that. Normally I wake up every 60-90 minutes because of pain. But...oh my gosh, taking both drugs together? Holy crap, who needs pot when you have that combination? LOL! I'm not kidding, I was freak'n stoned last night. Poor Wayne- God bless him- we're sitting on the couch watching TV. He's talking away, and I finally look at him and go "Baby, I love you, but I am only comprehending like every 10th word you're saying. I am doped up and dazed".

He started laughing... and being the smart ass he is, he goes "couch, table, cup, speaker, pillow, Eme, Oscar, pencil, pen, I, computer, drugs, mouse, picture, candle, pop, coffee, heart, glass, LOVE, paper, popcorn, kids, roses, cross, door, window, curtains, television, YOU.

Of course that point I seriously thought my poor fragile brain would implode...and after staring blankly at him for like 2 minutes in total confusion... I figured it out, and couldn't help but laugh. See, this is what I get for marrying a quick-witted dork. *laughs hard* But it's also one of the reasons I love him so much. :D

So anyway... that's the latest. I do feel a bit better this morning, maybe the sleep helped. In the meantime, my doc said to take the next 4-5 days and literally do nothing. No housework, no errands, nothing but sit around and sleep as much as possible. She said tons of rest is the best thing for my body right now so this flare-up doesn't somehow turn into a full-blown relapse. LOL...yeah like I'm doing much beyond that anyway. Kinda hard to be productive when you are dizzy, exhausted, have both hands acting wonky, and feel like your brain is in a cloud.

Be well all and I'll update soon :)
*hugs* Mis

Thursday, February 19, 2009

Neuro appt scheduled for tomorrow- I'm terrified I'm relapsing

I am freaking out a bit right now. I have felt myself 'slipping' for the past week or so. Two days ago, my right hand starting getting shaky and weak whenever I tried to hold anything with any weight. Yesterday, it was so trembly Wayne could even see it when I was trying to drink my coffee. This wouldn't be that big a deal- except until now, my weakness/tingly symptoms have been strictly on my left side. My right hand/arm/leg have NEVER been affected. Now? My right arm and hand clearly is, and it's scaring the crap out of me.

I am so tired it's unreal, and having a lot more random pains. I'm not sure if the Baclofen needs to be increased, or a I need something stronger, but last night I was almost in tears from pain. My brain is getting 'foggy' again too. Like just now? There was a long pause before I typed that sentence. I was staring at the screen going "ok, what the hell was I typing?". The other night, I got up to go to the bathroom, and actually turned the opposite way down the hallway and opened the door to Joshua's room. I just stood there a moment, watching my sleeping son, and then went "Why the hell am I standing here??????" and closed the door. As I walked back down the hall, laughing at my own idiocy, I remember "oohh yeah I have to pee!!" and went to the right room this time. Wayne and I did have a good laugh over it- I mean me just standing there watching Josh snore was kinda funny. But... that night I thought it was an isolated memory fart. Now? It's happening alot. I go to get my pills, and by the time I'm in the bedroom, I've totally forgotten why I went in at all. I go to get food, stand there with the fridge door open, totally clueless as to why I'm standing there at all. This morning- I couldn't even remember what thigh I'd given myself my shot yesterday. It was a scary moment- I have NEVER forgotten my last injection site before. Thankfully, Wayne did remember. But still- I can't give myself the shot in the same place, I have to wait 7 days before using the same site again. So now, I have written down my last 3 injection sites on a pad of paper, so I won't have to struggle to remember tomorrow.

So yeah, I am really really scatter-brained, hazey, and forgetful. I'm forgetting words, or even what I'm saying entirely, midsentence while speaking. So that combined with the increased pain, and right hand now acting up (my left hand is even worse than the right), I'm afraid. I am SO terrified that I am relapsing- and I'm terrified I have a new lesion on my brain hence why my right side is being effected.

When I called my neuro's office, Paula asked what was wrong. The minute I said increased pain and having issues on my right side she said "Oh yeah, you need to come in hun. Can you be here at 8:45am tomorrow?" So, that's what I'm doing. I am praying this all just a bad side effect to the Copaxone building in my system- I was warned by other MS friends of mine it's not uncommon for symptoms to get worse temporarily as your body adjusts to the meds. But... that doesn't explain why my right side is suddenly being affected. If it was just my left side? I don't think it'd phase me. But I know enough biology to know if my right side is now acting up- then something is changing in my brain and it's not good.

I'll update tomorrow after I see my neuro. Keep me in your prayers, please! I think I'm need of some big time.

Oh one thing that's cool- Wayne knows I'm having an awful time right now. I hear of so many spouses that get bitter, resentful, even nasty towards their mate with MS. My husband? Came home with a dozen roses today. For no reason- other than that tell me he loves me and cheer me up a little. *smiles* So... in that regard, I am so blessed. He is truly my rock and sanity.

*hugs*- Mis

Monday, February 16, 2009

A rough couple days...

Well, this has turned out to be hell of a rough week- and it just started.

First, I have yet another tooth gone bad. The worst part is, I don't know how much of the pain is the tooth and how much is the MS. I've read story after story of people having numerous root canals that they didn't need, all because the MS was causing facial nerve pain they 'thought' was from a tooth. Granted, I know my teeth are awful, but I also they just got awful in the last 2 years. It's not like I don't brush- I brush a minimum of twice a day. But... sadly, I'm told this is par for the course with MS. My immune system is just plain borked- and as a result my teeth are suffering.

So, I made an appointment at the dentist for tomorrow. Soon after, the phone rang. It was Joe, and I knew immediately something was very very wrong. He said in a quiet voice choking back tears "Something bad has happened... my mom died last night". I just...was in shock. I knew Pam had been diagnosed with congestive heart failure years ago- but I thought she was holding her own pretty dang good. Actually, Joe thought she was too- he figured she had at least another ten years with us. Apparently...we were wrong, and she died of a sudden heart attack last night. From the sounds of it, she died pretty much instantly, for which I am grateful knowing at least she wasn't suffering and in pain.

What makes this already devastating situation worse- is the fact Joe was planning a trip to see her with the kids in less than two weeks. They had been planning this trip for months. I know my kids were excited to finally go see their grandma, and I was happy for them to have that chance to connect with that side of their family. Then....this. I get so dang angry sometimes. I think to myself "Why, God? Why couldn't you just wait a few more weeks to take her? Let her son and grandkids see her alive one last time?" *sighs*

So it's been a very rough day. Yeah Joe is my exhusband, but as most reading this know we don't have a 'conventional' divorced-parents relationship. Joe is one of my best friends, we raise our children 100% together. I will always love him- he is the father of my children. And quite honestly, I'm so very proud of the man Joe has become. He's an amazing father to the kids, and he's always there for me no matter what it is I need. I still very much, and will always, consider Joe my family. To hear the immense pain and sorrow in his voice today just broke my heart. I felt so helpless. I wanted so bad to say or do something...anything...to ease his pain. But I also knew that wasn't possible. So...I just called him a half dozen times checking on him, and was sure to have the phone with me at all times in case it was him calling. Being there for him as his friend, and the one other person in his life that really knew his mom besides him, is all I could do.

I think back to when I met Pam... my gosh, I was only 20 years old and pregnant with Morgan. So many years have passed since then, and so much has happened. I can't help but examine my own life a bit closer as a result of all this. I can't help but to think "this is a wake up call- you need to do whatever you have to get yourself healthier despite your MS. Or you're gonna go way too early, just like Pam did."

So today... I mourn the lost of former mother-in-law, the grandma of my children, and the mother of an amazing man that blessed me with my kids. But I also thank her...for giving me that wake up call about my own life.

Mom, I'm sure you're peeking at this from heaven. I want you to know I'll take better care of myself so I can stick around long enough to keep an eye on your grandkids and son for many many years to come. Once you're done reading my blog- cruise around some other sites. There are people mourning you all over the internet right now. It's truly heartwarming. You will never be forgotten and will always be loved. Rest in peace and enjoy your reunion with your mom and dad. :)

(yes, I still called Pam "Mom" when speaking to her. I've called her that for almost 15 years, I'm not about to stop now)

Be well all, and may God bless you.
Mis




Wednesday, February 11, 2009

Fatigue is kicking my ass...

You know, it got quite a bit better for awhile. I was actually getting out more again. But this last week, fatigue is BIG TIME kicking my ass. Imagine being in a deep sleep, maybe even dreaming. Then there's a loud noise that suddenly wakes you up. You're startled, a little confused, groggy as hell, and chances are if the noise was nothing to worry about you can lay down and be back asleep within minutes. That...is how I feel all the time lately. I sleep 10+ hours a night, get up awhile. Lay down, take a 2 hour nap. Get up...still feel like crap...lay down again for another nap. Get up... count the minutes til bedtime...and back asleep. It's really bad. I hate it.

Thank God for Wayne. He's been doing pretty much all the driving of the kids, all the shopping, really everything outside of the house. I'm very blessed to have a husband so supportive and empathetic. I read so many horror stories on the MS sites I go to, spouses that are so uncaring and impatient with their MS stricken wives or husbands. I am truly blessed to have a husband that is so very good to me. Wayne NEVER complains- no matter how much of the slack he's forced to pick up, no matter how tired and useless I get, no matter how rough things get with my illness. He is truly my source of strength and comfort through this ordeal. I honestly don't think I'd have done half as well as I am without him helping me through every step of the way. Things may not always be easy or even fun in our marriage- but at the end of the day it's him who calms my fears and gives me a safe place to be vulnerable and weak. I am so thankful for that and for him.

And on that note... I need a nap. *laughs* I am about falling asleep even as I type this. But...that's where I am right now. Completely exhausted.

More later when I'm awake!
-Mis

Tuesday, February 10, 2009

Possible cure for MS?

Yes, possible cure for MS.

Researchers at Northwestern University may have actually found a way to at the very least COMPLETELY halt the progression of the disease and reverse ALL symptoms, if not a cure for it.

Have a read and watch the video clip:

http://www.cbsnews.com/stories/2009/02/10/earlyshow/main4789551.shtml

Essentially, they take the patients own stem cells, kill the patients immune system with chemo therapy, then infuse their manipulated stem cells back into the person.

The result? All 21 patients in the initial study have now been 100% disease and symptom free for THREE YEARS.

The interview with one man in the link above is astounding. For one, MS typically hits men a lot harder than it does women. At the time he took part in the study, his neurologist feared he'd be wheelchair bound in less than a year because he was progressing so rapidly. Now? He's had no more lesions on his MRI's, no trace of MS in his spinal fluid, no MS symptoms whatsoever, not even taken a single MS medication in three years. THREE YEARS!! He says while they can't call it a 'cure' just yet until a larger study is done (which is in progress), but as far as he is concerned- he's cured.

For the first time since being diagnosed, I have hope. Great hope. :D

*Hugs* -Mis

Saturday, February 7, 2009

The cost of 'living'

I...am seriously in shock right now. I think I know why my insurance company was fighting so hard to not have to pay for my MS meds. Are you ready for this?

The cost of Copaxone- the drug I take via injection daily- is $23,800 per year!!!

I broke it down even more. That means it's $1,983 per month. $65 per shot.

Is that not completely INSANE??? My gosh, that's more than some people even make in a year. I mean the sad reality is, for what my medication costs per year, you could house and feed a small family for a year.

I'm sorry, but when I saw the actual monetary value, it was just so shocking. So of course, that got me to thinking about what my healthcare costs as a whole will cost to treat MS.

This is the breakdown per year (roughly)

Copaxone: $23,800
Neurologist Visits: $2,300
PCP Visits: $1,000
MRI: $800
Baclofen: $520
Supplements: $360

Total so far: $28,780 per year

NOW...mind you. That is so far. I still don't have the antidepressants or anti-fatigue meds yet. That is also not including any additional MRI's that could be ordered, the rheumatologist visit, specialist visit, or any subsequent visits I may have to make to both. Not to mention blood work that will likely be ordered more than a few times over the next year.

And if I do turn out to have Lupus? *cringes*

So really... I'm guessing my healthcare for the coming year will end up costing between $30,000-$35,000. If I end up admitted to the hospital for any nasty relapses, add about $10K.

Now after all that...what's my point, you're wondering?

How, in God's green earth, did the cost of simply living with a disease end up so astronomical? At what point in our society did it become acceptable to make a huge profit off of others' illnesses? To me it's both astounding and saddening. At least I have some insurance coverage, even if they do overall suck. What happens to those without any at all? Do they choose living over housing and food? Or...are they forced to simply sit back...and die?

I don't know what the answer is, but I do know I felt I had to bring light to this topic. Healthcare in our country is completely out of control. The insurance companies have more say over your care than your doctor does, and the costs are unreal. Something needs to be done.

Food for thought! :D
-Mis


Friday, February 6, 2009

Update on stuff...

I've been on the Copaxone a little over a week now. Overall, I'm doing really well on it! Much to my shock (pleasantly so), you can't even feel the needle. Honestly, it's so teeny tiny thin you can't feel it enter the skin at all. In fact I've actually scratched my skin with it by dragging it accidently, and not even realized it'd touched my skin until I look down and see the bleeding scratch.

Now, it does definitely hurt a bit as soon as the plunger is pushed and it starts going under the skin. That is actually the only side effects I have so far- at the injection site. And boy, that does smart a bit. It burns and itches really bad, and the entire injection area turns fire red. Within five minutes, there's a spot about the size of a hard ball that is all red, with lump about the size of a silver dollar in the middle of it. Thankfully, that usually subsides dramatically within about two hours. By the next day, the lump is maybe the size of a pea, by the third day, gone completely.

Overall, I can't complain. The side effects are so minimal- especially compared to some of the common side effects with other MS drugs. At least this doesn't leave me feeling all sick and flu like for days. I can deal with a little discomfort at the injection site. And really, I look at like this: If a red blotch and burning itchy welt is going to make the difference between walking into my son's graduation ceremony and being wheeled into it a decade from now, I'll take the burning welt. It's a very small price to pay to maintain my quality of life and stall this disease.

I went back to my neurologist today, she's very happy with how well I'm tolerating the Copaxone. I talked to her about the pain I've been having under my rib cage and right hip, and she immediately said it's muscle spasticity caused by the MS. I told her my primary care doc had given me Darvocet but it didn't do jack, and that I'd gotten muscle relaxers from Joe that helped dramatically. She said more than half of all MS patients need them daily, and she gave me a prescription for one called Baclofen. I'd never heard of it, but she said it's very good for MS patients and has minimal drowsiness compared to most others. She also said that for some unknown reason, it's usually worst at night, which was also reassuring because that is when I seem to have the most issues. So, I'm starting on a low dose of that daily, and if I still have issues she'll increase it next visit.

We talked some more about the possibility of having Lupus, too. She said that's actually the biggest reason she wants me to go see the MS specialist at Wayne State this month. What bothers her isn't so much the blood test, it's the fact the antibodies for Lupus showed up in my spinal fluid. She said while she's 100% certain I have MS, she's not sure about the Lupus. It could be a false positive, it could be the MS mimicing Lupus. So, she wants to send to me to someone that can make a definite diagnosis either way. She said it's too critical to know whether or not I have both to risk guessing- and guess wrong. If I do have Lupus as well, that will effect how aggressively she treats my MS, and they'll have to monitor my liver and kidney fuctions very closely to make sure the meds aren't causing issues there.

It bothers me she's so worried that I may have Lupus, but at the same time, it's reassuring that she isn't risking my health by doing all she can to make sure we get an accurate diagnosis either way. I've met too many doctors that seem to fancy themselves infalable demi-gods, thankfully she definitely is not like that all. I've noticed she does second guess herself in a very healthy way, and she isn't afraid to ask for second opinions to make sure her line of thinking is correct. To me, it's a wonderful and admirable trait in a doctor. She hasn't lost her compassion or humanity. She actually cares about her patients and truly wants what is best for them. I consider myself very blessed to have found her and be under her care. I trust her, and her judgement implictly.

Oh we also discussed this nasty fatigue I've battling for almost two years now. She said if was sure I didn't have Lupus, she'd had already put me on something to help that. But, until she knows for sure, she doesn't want to put me on anymore meds than absolutely necessary. Which, I completely understand. She did say if the specialist does rule out Lupus, she'll give a prescription for something to help the fatigue next visit. She also wants to put me on an antidepressant, which I agree is needed. Hopefully, I don't have Lupus so we can focus on the MS and getting the symptoms under even better control my next visit. (which, btw, is March 26th)

*laughs*....though it looks either way, I'm going to be a walking pharamcy. Copaxone, Baclofen, Darvocet, and likely something for fatigue and an antidepressant. Good Lord that's a lot of medications to be on- especially considering they're all very long term. Ohhh, and she wants me to take a B12 and a vitamin D supplement, too. Not a multi-vitamin either- individual suppliments. And, she thinks the Omega 300 fish oil is another very good suppliment to start. So add those to the growing laundry list of stuff I have to take daily. Geez... I'm beginning to feel like my grandma. I'm going to need one of those dorky 'pill a day' containers you see in geriatric units just to make sure I'm not missing anything. I know it doesn't seem like a big deal to most people- but 5 prescription drugs and 3 suppliments every single day is A LOT to me. I'm the type of person that until now, rarely even finished antibiotics. I have always really avoided medications of any kind because I've always felt they're over-used. I don't want them unless they're absolutely necessary. Well, these are all absolutely necassary, and there's so many I find myself having to keep a list to keep them all straight. I know it sounds minor, but it's a pretty big 'mentality adjustment' for me to go from taking literally nothing for years to eight different things a day...and likely even more in the future. Heh... I think I'm going to dub this my "MS Cocktail". hahahaha!

Well, it's very late and 7am comes around way to early, so bed time for me. I'll definitely update again after I see both specialists this month, or sooner if things change before then.

Be well all and may God bless you :)
Mis